You lot are probably thinking we all going through the same thing and yes, we are! But I have nowhere else to post, because I do not know anybody who is going through similar to what I am.
I managed to acquire all of my medical history from the Audiology because I have an upcoming appointment for a cochlear assessment. Since I was 5 years old, I had nothing but problems with my ears. Grommets put in, a myringoctomy (cut eardrum to release fluids), producing dark discharges out of both ears daily, speech therapy because I sounded very “nasally” and was not understanding both verbal or written languages, I apparently had a normal audiogram after surgery (was deaf in one ear before that) but they left me to my own devices for 8 years, despite letters from teacher of the deaf and the council in between those years, sending them letters (I counted 8 letters) that I am still unable to talk properly, behaving badly at school and cannot listen or follow instructions so maybe I was still deaf. Speech Therapist refused to help unless they sort my hearing out first, so I never even bothered getting the full course. That would have definitely enabled me to speak properly.
If I had been aided when I was younger I wonder whether outcome would have been different for me. As I said previously I still cannot pronounce any HF words, let alone hear them and hearing aids are not even helping any more, pointless getting them adjusted all the time because it does not do anything. I really want to give them up because they are not even helping but I cannot because if they find that I have then I most likely will not be eligible for an assessment. I had 4 audiograms done and the slopes between them all have gradually got steeper as time has gone on so no doubt it will continue to get worse.
Sorry just my rant for the morning! I know I said I refused to wear my hearing aids for YEARS, and clearly stated on the letter from Teacher of the Deaf I am refusing because I was getting bullied and picked on (which they did nothing about). There was no deaf units where I lived so was unable to attend to one. People probably think this is not a big deal but it is a massive deal. It affects our confidence, our future and career prospects, as it did mine.
I am literally so fed up of hearing sounds that are too loud and nothing is clear enough for me to understand. We had people over at the weekend and my head was pounding, that was after 1 day. The exhaustion of TRYING to hear what people was saying.