My hearing journey starts again

I’ve just had my 6 month mapping, to say it’s made a huge improvement would be an understatement. With the hybrid and the high frequencies it hard to get rid of popeye robotic speech. So my Aud fiddled around with her computer reducing my highs and trying to get rid of popeye. Whatever she did I’m grateful she has given me a lot more clarity. When I’m next in at the clinic I’ll get her to give me a bit more clarity still. Then all will be normal, I will be grateful to be rid of popeye.

It’s been a big 6 months, I’ve gone from struggling to hear in most situations. Now the ease of hearing is a pleasure. To be able to participate in conversations without saying “sorry could you repeat that”

Edited to add - I also had my 6 month post op check with my surgeon. He was talking about my left ear and it’s ?being congenital. Then penny dropped, it was one of those moments when I just remembered I was born 7 weeks premature. He just said “well that gives me the answer as to why your L ear is deaf. Fingers crossed your hearing doesn’t drop off in that ear. As it will be a struggle for you to get a good result” I asked him usually isn’t prem deafness bilateral and he said yes, your one of the very lucky ones who are unilateral, and no ones knows why.

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Am so glad all continues to go well. Best wishes for ongoing success.

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thank you for the update. Wishing you continued success on your journey. Keep posting. Yours is a truly remarkable story.

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9 months tomorrow since surgery. I’m loving my bimodal hearing. I’ve at long last got the balance between the CI & Resound right. But I’m giving serious consideration to ditching the the hybrid attachment. While I enjoy the high frequencies when listening to things eg music, but it’s the high frequencies that cause all the popeye type sounding speech. While it has gone to a certain extent he’s still yapping away.

SIGH…I’m having connection issues… I had my processor replaced 3 months ago but the issue still remains. So I’m biting the bullet and getting a new iPhone 11 tomorrow. My current iPhone is an 8 and the iOS is 13.3.1 so it’s up to date.

Now I’m the original IT dummy, I can’t pair anything. Not even one at a time! But when I have to pair 3 simultaneously just plain forget it! Not a hope in hell. So it looks like another trip to the Cochlear Care Centre coming up very early next week. Fingers crossed that when I back up my new iPhone all my pairings back up as well :crossed_fingers::crossed_fingers::crossed_fingers:

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I worked for me the last time I did it. But that was iPhone 5s to iphone 7+

Sadly no, all my pairings didn’t come through onto my new iPhone 11. All the MFI stuff did but not my BT pairings. Which doesn’t make one bit of sense to me. So I’m off into the CCC today for some help. As I can’t get my processor to go into pairing mode. Sigh!!!

What a day in at the E&E I have had today. I’m sad that today is my last day in at the CIC because she did work hard to solve all my issues today after my email to her. I did like her as I’ve had her since 2018, when I had my initial assessment. I always felt she gave an honest opinion, not one that she felt that I wanted to hear. Today marks the last day of my acute care needs hence the move to the CCC.

First up she did an audiogram, thought about it, went and discussed my audiogram with another aud. They both came in and discussed their feelings and thoughts with me. They both felt I would be better going with full acoustic mode as they didn’t think I had enough residual for a hybrid EAS. Considering all the issues I’ve had I was very happy to try the acoustic mode. Oh boy! What a huge instant difference it’s made. NO MORE POPEYE! After 15 months of listening to him yak away, I’m very happy to hear that he’s gone… That static has gone, the noise that was bothering the kids has gone, HAPPY DAYS! All my the other issues have just gone, it was the EAS causing all my problems.

My scores for my supposed 12 month assessment at 15 months are as follows.
WRS with CI 82% was 28% pre op. BIL with HA 90% was 36 pre op.
Sounds correct with increasing white noise.
CI 86% BIL with HA 96% while doing CI ear I had constant white noise going in my L ear plus the increasing noise from the speaker.
Continual White noise in HA ear increasing background noise through the speaker.
CI only 2%
Not sure what this is except my aud said the lower the better.
We Aussies sure do get it tough with this white noise :poop::poop::poop: during assessments…
From here I’ve been transferred down the road to the CCC, for all my future mapping for the remainder of my life.

To say that I’m stoked with today’s outcome of all my issues and my results I’m one very happy little camper… :dancer:t2::blush:

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@Deaf_piper great to hear from you. Now your hearing journey starts again again :slight_smile:

@Dani I’m just glad all my assessments are finished, done and dusted as we Aussies say… Because the white noise with increasing background noise and people talking loudly through the speaker are total BULL​:poop::poop::poop::poop:… Especially when you have to try and work out what the sentences are the lady is saying…

Do you have assessments like this?

Yes we have. After each adjustment I have to do “guess” 20 one-syllable words and 20 five-word-sentences within different amount of white-noise. The latter is to find out SNR. Normal hearing is around -9dB, at my last two appointments I had -0.5dB (the lower the better). In any case the tests are done only with my CI.

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I’m pleased for you.

Must be nice to not have your CI ear with anything in now (the dome).

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Thank you @Zebras it’s very different I must say after having molds or domes for many years. I have a little bit of useful natural hearing coming through, every little bit helps.

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@Deaf_piper so glad to hear they sorted out those mappings from hell issue and that they put you on the even better path! Awesome results you have there! Congrats, you did tremendous job!

Congratulations.
Impressive numbers and fixed so many issues too.
Looking at your audiogram, will you get the second implant?
Appreciate your detailed update.

@Deaf_piper so just to confirm what you’re saying is you’ve gotten rid of the dome/earmold and are now just using the CI? I’m getting a terminology problem because that would mean full electric hearing, not full acoustic (EAS is electroacoustic, electro for the implant and acoustic for the earmold/dome).

@Raudrive they won’t do my L ear until my residual drops in that ear a lot. I was discussing that with my Aud yesterday, she said it needs to drop to around the 60 dB mark before they will consider doing it. But with my Bimodal results from yesterday I’m no worried. That ear has been deaf since birth, 7 decades, it will take a lot of hard yakka in rehab To hear in this ear.

@phobos512 I’ve ditched the hybrid EAS totally now and I’m fully electric, and I still have some acoustic hearing coming through due to my preserved residual. Mind you that had started to decline. They said it could but couldn’t give a timeframe. It’s been 15 months and I’ve lost 10 dB.

I’m disappointed that I don’t get to stay with my Aud but I move from acute care to long term care now. So I have to get used to a new Aud all over again.

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You never know, you might like this new audiologist as well or better.
I am very happy for you.
I am starting to see why there is a CI evaluation. It’s not just about your hearing. It’s also about the person. That person needs to want to hear again. Effort is needed to hear again and justify the surgery.

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@Raudrive Hearing through electric is very different sounding to EAS. I’m going to have to do rehab still with the electric. At the moment it’s all very new hence the rehab needed.

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Why do I always underestimate the volume in the quiet room of the Auds office? The volume was perfect inside that room, but outside in the big wide world, with trams, cars and buses going by, general hustle and bustle of daily life, I’m calling out for more volume. SIGH… Anyone else familiar with this?

When I put my ears on this morning I have no BT connection! To anything except my phone… I wish I just had 1 iota of IT skill at pairing all of my 4 devices…SIGH!..

So maybe I need to go see the CCC, update my software to 14, so they can fix my pairings and sort any software issues from my software update. Also give me another mapping With more volume as my master volume is on 148 and my one and only mapping is on 10. My accessibility master volume is in 100% and my phone volume is as high as it can go. I realize this volume issue could be because I’m not bimodal any more so I’ll wait and see what happens.

Awesome results you have thereCongrats, you did tremendous job , so no tinnitus after today