Thanks Wyatt. I am using Phonak V 70 but shifting to the Marvel version. Not much help in case of severe loss on some days. Does Valium give temp relief re hearing or for vertigo? Please do see my reply Stephen - detailing the kind of problems I face.
Once again thanks for your inputs
“Sea salt” is still sodium and if you’re trying to avoid sodium should be avoided. Also most processed foods have considerable sodium.
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I have had vertigo problem since my days as a youth. It comes and goes. I cannot lie in my back without being dizzy for days. If I roll over from my back to face down before rising, the dizziness is usually minimal. If I fall asleep sitting up and slide down, I have several days of torment fighting to stay upright.
I have glaucoma so meclazine is a no-no, but in emergencies I have been known to take them. The single thing I have found for me is Guaifenesin. It makes a tremendous difference for me.
As a former Meniers sufferer you have my extreme sympathy as it is a terrible affliction… salt avoidance is your main aim, along with caffeine in any form, process foods are loaded with salt and they should be avoided as much as possible! Avoidance of visual triggers also helps, like large shops or malls with distinctive parallel flooring would and did send me into a vertigo attack… In my case I got mostly severe cluster attacks which lasted approximately 8 years or so and the Meniers eventually burned itself out, the downside was that it took most of my residual hearing with it!!! Good luck in your efforts, Kev👍
If you can, try Zofram (generic - Ondansetron ODT) Developed in Switzerland for cancer patients. I’ve talked to medical people about it and most think is it the "top-of-the-line for nausea caused by vertigo the # symptom of Meniere’s , although some patients have tried both and a few preferred Meclizine.
Mine seems to change with weather patterns or changes in barometric pressure or humidity.
I thought at first it was perhaps weather related. But not so in my experience. Have been unable to find a trigger. My problem is more hearing fluctuation rather than vertigo. My hearing loss gets pretty severe at times.
How does your vary with the weather conditions - up and down
From what I have read, Meniers’s does not go away. It merely goes into a “rest” and can reappear after several years. My affliction is not so much vertigo intensive as it is hearing loss, at times very severe and even the hearing aids (the best ones available today) do not work! I take stemitel for mild vertigo events.
I do not have glaucoma nor do I suffer from frequent vertigo. My problem is hearing loss which becomes very sever at times. But no triggers found yet
I thought sea salt was better that the normally consumed table salts. Perhaps less sodium. Nevertheless my salt consumption is considerably low now.
so what helps for restoring your hearing - even temporarily?
Nothing helps restore my hearing on demand. It just goes up and down sometimes based on the barometric air pressure. I’ve found that when that happens it is usually a pretty good indication that another attack is coming!
I take meclizine three times daily and zofram as soon as an episode begins. Sometimes they work but in most cases it’s too late by the time an episode begins. Very debilitating. Had to start taking meclizine even at bedtime now that I recently had an episode in the middle of the night.
I’ve been on a low sodium diet for 26 years and took a diuretic for 24 of those so I’m not real big on either one of those as helping. The problem is that nobody knows the true cause of this disease. Lots of scholarly articles out there about it but not really any known help, only conjecture as far as I’m concerned.
It’s so bad that even though the VA says it is rate-able at up to 100%, they rarely approve it because there is no known cause of this disease.
We tend to dream up home cures when the attacks cease for awhile but they invariably come back! My current ones are since mine is in my right ear I try not to sleep on my right side. So far the episodes have slowed a little but that’s happened with everything else ive tried also. I also limit my time in my garden so I don’t have to bend over too much. Not sure about that one either.
Hi, I came here specifically to see if anyone else got nausea and dizziness from lying flat. Mine started about a year ago but I’ve suffered from vertigo episodes for the last 25 or so years, about 1 horrific episode every couple of years. Thank you for confirming this can happen from Meniere’s. It really sucks…
Every time you lie flat? Does it pass after a minute or so so long as you remaine still? If so it is likely BPPV, which is also common in Meniere’s patients, and can be treated fairly easily by an audiologist or physiotherapist familiar with the treatment.
I have open angle glaucoma. I try to keep my use of meclazine to a minimum. When I have ongoing vertigo I turn to the Guaifenesin and lots of water. I use generic Flonase and OTC antihistamines year-round.
To those that suffer meniere’s,
Have you heard of the procedure called “Perfusion?”
Basically a perfusion is a minor procedure where the ENT/Surgeon fills your middle ear with a steroid cocktail that over the course of a couple of hours soaks through the oval window into the inner ear.
Here at Shea Ear Clinic, the procedure is done every day, and some people have wonderful results in relieving the dizziness/nausea, as well as the big swings or fluctuations in hearing loss. We have people travel here from all over the united states to have this procedure performed, and find relief from their symptoms.
I was unfortunate to suffer from Meniere’s for many years… and also fortunate that it burned itself out after about 8 years or so, it took most of the residual hearing I had left in the process, I would get cluster attacks from 1 to 6 weeks duration and it was not uncommon for me to be in my bed for a week solid and even getting up to the toilet to have a shower etc was difficult without assistance, nausea, spinning room or walls coming in and out, vertigo, no balance whatsoever and unbearable tinnitus that on a scale of 1 to 10 hovered around 9 just before and through each attack which could last for days on end… A terrible affliction which weighed heavily on my self, but was perhaps even worse for my wife and family as I was incapable of work and I couldn’t plan ahead for anything!!! There were moments that I would easily have taken my own life, such was the depth of my depression… But, suicide doesn’t take the pain and suffering away, it just passes that pain on to your loved ones!!! Eventually I was able to predict fairly accurately when an attack was imminent, I was even confident enough in my predictions that I was able to drive again at certain times, granted I would not drive far for obvious reasons and only occasionally I had to pull over and wait for an imminent attack, roll the seat back and ride it out till the meniere’s attack subsided… I cut out all alcohol, caffeine of any shape or form, reduced my salt and sugar intake as much as possible… I always tried to avoid large stores or shopping malls with parallel flooring, which could trigger an attack! In a way, tinnitus was my guide and any change for the worse was the catalyst that an attack was very imminent… eventually the attack’s began to decrease over a year or so until they just abruptly stopped, the only lingering damage was my severe/profound hearing loss and my balance is occasionally suspect… Anyone with this disease has my heart felt sympathy and hopefully like me it burns itself out, for the last 12 years I have been able to hold down full time employment and nowadays I work as a supervisor with criminal justice… just noticed this was an old post, which I have previously submitted a comment, no matter this is a more in depth reply, which will hopefully help some of you to come to terms with this disease… good luck. Cheers Kev.
I also have Meniere’s, with MAV (migraine associated vertigo). I also have lost my balance function and my vision is my balance system. Triggers for me are specific sounds, causing increase in recruitment/hyperacusis/tinnitus. I tried the meclizine and also valium, neither helped. For more than 15 years now, I have been using klonopin when symptoms increase, and it usually will prevent an attack of rotational vertigo/vomiting. If that doesn’t help, and i end up with vertigo I have oral promethazine to take. Haven’t had to go to ER for many years since I have used these meds.
I have Resound Linx2 961’s but will be replacing them later this year, unsure of what to try. I wear aids in both ears, but the left is profound hearling loss, and the aid mostly is worn to mask the tinnitus and buffer non verbal sounds which trigger symptoms.
Good luck to all, as we all struggle to find coping solutions. Probably one of the most devastating things about hearing loss or Menieres, is the isolation if causes and the inability to participate in some family events. The situation is made even more difficult for others to understand, since Meniere’s is not a visible disability (unless you watch some of us walking). I use a trekking pole, or my Service Dog for balance assist. I prefer using my SD,
Can you offer some clarifiacation on how long to expect hearing loss during an Attack? I know everone has very different attacks and symptoms, but I am hoping someone can offer some background for refernce. Woud hearing loss last anywhere from minutes to days? Or if it got into the days, should my assumption be that perhaps it won’t return? What were your experiences if you don’t mind me asking. Thanks for anything you can offer here!