Mappings from Hell

Did they do the hearing in noise test with you? How did you do there, if so?

Did they do a new audiogram on the spot and reprogram your aids consistent with that audiogram?

69% is pretty good, all things considered. I forget, I remember some time back I posted the Medicare or SSI criteria for CIs, pretty sure it was in response to a comment you’d made…Is that your provider?

It’s amazing how a simple phone call to CCC to get all my devices repaired properly can be misconstrued!

Yesterday I rang the CCC to try to get an appointment to get all my BT issues sorted. Just now I received a phone call from the CIC asking me what’s going on ?? And if I’m unhappy with my mappings to make an appointment at the CIC. As I explained to the head Aud that rang I didn’t complain to the CCC, my mappings weren’t mentioned, I rang with an entirely different issue regarding BT and bimodal setup.

WOW! How stories get confused!! The CCC has just rung me, and I explained what was going on…that my aid has just come back for repairs, and I feel sure it’s all BT involved. I now have an appointment for Monday arvo to get all these BT issues sorted out.

They need to learn how to listen :laughing:

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No they did not test in noise.

Yes, they did a new audiogram, it is worse than what my avatar shows here. The audiologist was surprised at my sentence understanding with both aids in.

That’s odd, my understanding in quite was 94% combined, it was when I was tested in noise and came back at 40%, 36% and a combined 20% that I was qualified. If I could have held all my conversations in a testing booth I would have been fine, in the real word my understanding sucked.

At least on the form that Cochlear uses testing in noise is standard. I would at least contact the office and find out why it wasn’t done.

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My testing was done with Cochlear. The forms are Cochlear. It has a section for testing in noise but it was not done.

I am hijacking Deaf pipers thread, sorry Sheryl. Glad you have an appointment for Monday about your aid.

Deaf_piper - sorry to hear about your setback. Its always a tough call when someone new gets involved (who was unscheduled) to work on someone’s hearing aid or CI. Do you cancel the appointment because you’re unfamiliar with the new (Audi) or fill-in or do you continue on and take your chances. Trust is such a key factor when dealing with a Audi and its takes time to build up that trust. Then someone new shows up and you are back to square one.

Just looking at your hearing chart - you should be able to find a suitable hearing aid that can deal with your hearing loss, that will out perform a CI. With your hearing loss I would not rush to get a CI but would start testing current power hearing aids or wait for the next round to pop up end of year or next. A CI will not let you hear better in background noise or loud restaurants. Everyone struggles with that along with those who currently wearing hearing aids.

Thanks for your thoughts but you really don’t understand my hearing loss.

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@Raudrive it’s all good, I’m not worried by your conversations. :blush:

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I feel for you.
I mean, sentence recognition in quiet, to some 70% might sound good, but to me it doesn’t sound good. I’m looking from a perspective of (hopefully soon) working person, and workplace isn’t ideal environment like their test booth, but even if we assume it is, your result say that you don’t get at all 30% of spoken things. That’s a lot IMO. I can’t imagine how you feel going by everyday with so much need to ask people to repeat themselves. I guess it’s probably easier with familiar voices.

My word score in that pathetic noise with good ear and aided bad ear was around 80 and I felt defeated (good ear alone was lower, which shocked me). It hit me hard how much HA really don’t help for new words and people. Like, I had a feeling but now I have measured value.

How can anyone say that’s fine and you don’t need more help, if that help is technologically available, it’s beyond my comprehension. It’s not like they’re paying for it anyway.

But I guess they hear good, so they cannot relate what really means not getting 30% information in.

I think main criteria for all those fitters, audis, people who make such decisions should be that they themselves are hearing impaired and in need of help. Especially those for testing CI candidacy. Then I believe we’d have different outcomes and definitely more empathy. Or maybe that they test them on empathy and ask for high score.

Until then, we’re alone in this, in some way.
And yes, trust is important and keep searching for it, both of you. My hugs to both of you. This journey really is tough…

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Spectrumplay, Raudrive has a slight better audiogram than me. But I can tell you: speech intelligibility with one CI since March this year is a HUGE different for me. In the booth the WRS didnt increase very much atm (55 -> 60%). But in real live with both HA and CI I can understand people much more easyly. I dont need to ask my family for repetitions that much any more. I can understand conversations with wrong pronounciations at all like my polish colleague does. I even can follow my TV without a streamer (but it’s still difficult though, my wife turns it very low - too low even for my childs), as long as you don’t get a hell mapping :smiley:
But yes, conversations within noise is to be learned again. But at least I can participate in other’s life again. That’s very valuable.

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@Deaf_piper, I am so sorry that your last appointment was such a mess. I had my 3rd on June 2nd at another Aud - I knew that before. That mapping wasn’t too good, too. But I had a saved one on my 4th program as a fallback. I wonder that you didn’t get one saved. My clinic is only a 1h travel away from home so I could schedule another appointment for last week. That mapping is much better now, but I had to know in detail what to change, that wasn’t easy for me.
I am lucky to have my clinic in the nearby. Most of my CI friends have to stay at least overnight for each adjustment. I think that spplies to you, too?

@Raudrive, that’s my suggestion, too. It’s in your hand to reach 69% again. I’ve tried to fail getting good WRS with both HA when I was at my clinic the first time, too, just by reprogramming the HAs with my Aud’s settings :smiley: . I’ve strongly wanted my first CI and I am now looking for the 2nd one. Maybe in 6-12 months.

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@Dani I’m about 1.5 hours away from my clinic, it’s right on the edge of the CBD with absolutely no parking within cooee of the Clinic. It’s 3 hours for both ways. So I have to get a bus then a tram for the appointment. If parking was available it would take 30 minutes both ways.

I have an appointment on Tuesday at the CCC, to get my BT sorted. I also hope to get the master volume, treble and bass icons activated. Which will help give me better control of the God awful mappings. I’ll persevere with these current mappings for a few weeks. As I do need to lay down new sound pathways for the high pitches. With better volume control I’m hoping they will be tolerable.

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Someone driving you there would help. They could stay busy while you had your appointment.

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@Deaf_piper Sorry to read about your bad mapping experience. I’m going to guess this happened because of the different audiologist. If you had your regular audi, this would not have happened? If so, another tip to self not to let another audi handle mine when the time comes. All of my follow-ups are to be handled by the same audi in the surgeon’s office. I’m just hoping she doesn’t leave in a year.

As I read this thread, am I to understand that you have control over your saved programs and can save a previous mapping to your processor? It won’t get overridden on a future mapping? You know how I feel about loud sounds. If you don’t get used to your mapping, I hope something can be done.

@debbie_o. If your Aud saves the mappings they should be on the computer in your Auds office. The N7 only has room for 4 mappings. So you get 3 new mappings and keep one of your old ones.

If my regular Aud hadn’t been off sick I’m pretty sure I wouldn’t be in this situation now. If I can get the master volume activate tomorrow I will have more control over the volume, I will be able to add a bit of bass to these high pitches, hopefully bringing the pitch down then I might be able to work the volume up to 10. As it is now all these mappings are on volume 1, it only goes up to 10. So I can’t go any lower than I am now. I will see what happens tomorrow afternoon.

I’ve had an expensive afternoon at the CCC getting everything fixed. I needed to buy a new phone clip as my old one was broken, $460 AU later. I now have all my bimodal hearing back. Also one of my old mappings has been returned and keeping 3 new ones.

I also learnt that Hybrid EAS users can’t have any of the following “master volume, bass & treble” activated in the Nucleus App. Which is a nuisance but I suppose they have a very good reason for this.

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The Good, the Bad and the Ugly. A day at the CCC.

A learning experience. Thanks for sharing.