Weeee great news! Good surgeon indeed! Can’t wait to hear from you first impressions with this second activation
Any updates?
I have an evaluation and discussion scheduled for unilateral CI…very depressed and scared. Worn hearing aids for 20 years, I’m 38, last month my “good ear” went completely deaf , sudden loss
Your journey gives me hope though.
Good,luck brother, curious to hear how,you’re doing .
You have been quiet.
How are you doing?
January 15 is coming, won’t be long. Getting your directionally back.
You’re right.(*)
I am fine and I am really very happy with the surgeon’s success.
Last time in February I had to get painkiller two times during the first night and it still hurt very much in the second night. This time the wound didn’t hurt at all not even during or after the first night. The wound where the magnet sits is not swollen - this is really impressing. A couple of minutes agoI tried to attach my first Sonnet to the new ear and the coil holds with its current magnet (size 3 out of 5) the same like on the correct side. (of course I didn’t turn on the processor).
I got the longest electrode array (31mm) inserted into my inner ear - the same as last time. My residual hearing is lost on both sides. But it looks like there is very little hearing at very low frequency (<100Hz) coming back since yesterday evening. On the other hand it is great not to hear at all if I don’t want to. This is completely different from just pulling out my hearing aid. In the past I often heard the words “pull your HAs out then you don’t hear the noise” - that made me mad since this was totally wrong - those words are correct now . Indeed it is more difficult to understand people talking with really only one ear now. Although there was not much use for me in still having a hearing aid before my surgery. But I’ll get my sound processor in 2 and a half weeks anyway. It’s just a matter of patience.
I am sorry to hear your journey. sudden (unplanned) hearing loss is something that no one can imagine. This is a very hard time. But on the other side the chance is very good to have success very fast - as long as you don’t wait to long for a surgery.
(*) Sorry that I didn’t write much the last few days. During working hours I am using my computer all the day. During my recovery from surgery the last fortnight and now during my additional 2 weeks holiday time I try to be at my PC as little as possible. Writing so much text on a smartphone is no fun for me.
@Dani I’m so glad your second op went really well for you… Great news in fact…
2 and a bit weeks to activation will go quickly for you…
Then the hard work in rehab starts again.
Thinking of you Dani Good Luck
Oh yes. The rehab for my first implant is in fact much easier now. Because I must listen with my remaining CI now, 24h a day. There is no “fall back” or a second input. This is not bad but it is difficult to have only 1 working ear at all - but this was expected and changes in a few weeks.
The rehab for my second implant should be easier than for my first one after activation. When training my second ear I can just put off the first CI and I don’t hear anything else but my newly implanted ear.
Has your audiologist recommended to do this? It makes since but just curious.
Will you get a Sonnet for your new implant?
Happy New Year to you.
Glad to hear that all went well
Well, today I had the first fitting of the second ear. The hope was, of course, that it would go the same as the first time. The expectation was that there could also be a relapse. That’s how it ended up being, but for me it was okay. The level reached is still emotionally high.
I also have the sound of wind chimes like the first time but not nearly as pronounced. That is of course good. But the spontaneous understanding of speech was there the first time. Today I recognize speech in my recently activated left ear but I still have to train a lot before understanding it - so now it’s the normal case as most of us have to cope with.
I have the impression of hearing cartoon characters, too. Not Mickey-Mouse, however, but like the first time more like Benjamin the Elephant. Let’s put it that way, I was hoping that everything would sound too deep again. This makes it easier to adapt and align with the first ear.
But I have to say, I can already see very clearly which one my alpha ear has been before the first surgery. This is the now activated left ear. Sounds are already much more present in the head than they are in the right ear. It was the same all my life wearing hearing aids. Which is why I always used the telephone with my left ear - the voices were always much closer.
Single-sided listening in the last 4 weeks was also an art. The week immediately following the second surgery I turned up the first SP so that I could understand anything. Then I turned it down again week after week. As a result, however, I actually had to ask more often. I had turned it down because otherwise I feared that I would overload one ear - and this ear had to hold out for at least 4 weeks! Now being double-sided again I am looking forward more relaxed.
As some of you already know I’ve choosen to try out Med-EL’s Rondo 3. Actually I can’t write much about it yet. Yes it is attached to my head. With magnetic strength 3 (out of 5 possible, sorry Raudrive). I think that magnetic strength 3 is stronger in the Rondo than in Sonnet’s coil plate. At least it is tighter than the other side with “the same” magnetic strength.
tbc.
@Dani that’s terrific news that you are activated and hearing speech. Some hard yards in rehab and every conversation will fall into place with ease for you. I had to Google pictures of the Rondo 3 to find out it was exactly the same as the K2. You should feel bad for Raudrive. But then he’s just got a thick head . Sorry Rick…
Good luck with your rehab Dani
I had to read your post a couple times to try and understand everything you have written. Lots of information.
It appears you are getting lots of information in your second implant, similar to your first implant. That is a very good sign. It also looks like you will have to go through a learning period similar to your first implant, is that correct?
Hearing from both sides must be exciting, even better than before. Just guessing, you will be doing great in a short time.
Yes, I am jealous of your Rondo 3. I mailed my Kanso 2 processors back to Cochlear last week. Maybe later they will hold to my implant.
Congratulations Dani. Big step towards hearing better. Swarzbier in hand to you.
Whoa, awesome news! So glad to hear you’re doing well
Which color is this one?
@Deaf_piper @Raudrive @Blacky
Thank you for your posts.
Blacky, have a guess what colour my processors are. Hint: sounds like your nickname
Hearing on both sides again is great of course. But I have to learn to interpret those new sounds. It sounds as if my second ear gets environmental sounds half a second too late. I hear it first in my right and then in my left ear, it’s like an echo.
There is familiar sound now in my new left ear. But I don’t understand people talking. But hey, I was just activated yesterday. It’ll take its time.
Thanks for the Swarzbeer, I had one yesterday to honor that day
Dani,
Your emails are so welcome. Your attitude is unglaublich, and I think inspires a lot of us in this community.
Question: When will they do a new audiogram? It is probably a lot too early now.
–Steve
This is interesting. Can you explain this? Wondering if it’s a sound processor issue or just the way the brain is working at this time.
People with cochlear implants are word and sentence understanding tested usually. Part of the tuning process of the sound processor is a type of audiogram test you might say. The implant is tested at different frequencies and at different volumes to set the processor gains. I think this is a good explanation.
This is for 100% sure the resposible of my brain. If I concentrate on what I really hear the sounds arrive at the exact same time in the left and right. The problem maybe the fact that sound sounds way too low (frequency, not volume) in my new left ear.
@StevenS
I think Raudrive has explained it correctly.
At my audiologist I get an audiogram at every appointment. Tone and speech recognition. The latter was just rubbish yesterday. Next appointment is on monday.
Great. Please keep us informed. --Steve
Whoa. This brings food for thoughts.
Yeah, I mean, don’t push it
Black is awesome gadget color if you ask me
Very happy with your experience and congratulations on the wonderful success. I really like your story. It always looks great. I have a question. I read that you had a cochlear implant on December 20, and it was activated on February 17 for a long time. Why?
I had two surgeries and two activations:
- right ear surgery on 2020/02/20, activation on 2020/03/11
- left ear surgery on 2020/12/16, activation on 2021/01/15
The first activation has been “only” 3 weeks after surgery. The second activation has been 4 weeks after surgery. At my hospital it is the usual case for activation done after 4-5 weeks after surgery.