I decided to share my story with only people that can understand me. I’m sorry for bad English or wrong names for medical stuff. I’m not English native speaker but this is the first place where I see more information than “SHL happens”.
It all started 6 months ago, I was still 19 (!!). It was a few days after New Year’s Eve, I was getting ready for going back to college. I took a nap during the day, was feeling absolutely good. Then I woke up and heard some weird noises. I didn’t know that yet, but it was tinnitus. After a few minutes I found out that I cannot hear the television in my right ear at all! Nothing except that irritating hum. After next few minutes I had dizziness when I was trying to stand up or sit, like in a boat during the strom. I didn’t know what was going on so… I started to cry. After 2 hours my parents came back home and took me to the doctor. He didn’t know what to do so told me to come back the next day to the ENT doctor. Next morning was terryfing. The dizziness was so strong that I was about to throw up, couldn’t walk straight. I was taken to the hospital and got first steroids to my veins. I spend there a week, had MRI (everythng was OK), VNG (result wasn’t correct what explained the dizziness) and audiogram (all freq about 70-80 dB). The whole next month I spend in different hospitals where I had all the test done for a few times and I got about 6 steroid injections under my eardrum. I was even at two sessions in hyperbaric chamber, but after second I was vomiting so hard that I lost consciousness (probably because of pressure change). At home I was taking steroid pills for next 2 weeks. What is the result? My audiogram now is:
So I have my low freq back and… I gained 15 kg thanks steroids. Nothing more But it’s not the hearing loss that is the worst for me.
I hate tinnitus that I have all day, always. I hate that if I hear something in my right ear it sounds like I would be under the water! It’s terrible because I’m tired of people’s voice, I’m often tired of my own voice! And what is more- I am hypersensitive for sounds. Going through the city center is enough to cause my headache. Now I sit at home so I don’t leave it often but I am going to start my studies again in a few months and I’m afraid of it. Now I sleep for 10 hours a day because I am still tired of all the noise and my tinnitus. How am I supposed to focus on books? How am I supposed to meet new people when I’m losing my mind? That situation is worse than feeling real pain cause there is no pill for it… There is no real treatment. Tomorrow I’m visiting my audiologist for trying first HA (she is aiming at Oticon Alta 2, will see). I hope that HA will help me to go back to life and fight that torture.
Anyone had a similar boucket of ailments at the same time? Now I feel like an alien because noone around can understand what I am going through…