@Raudrive it’s all good, I’m not worried by your conversations. 
1 Like
I feel for you.
I mean, sentence recognition in quiet, to some 70% might sound good, but to me it doesn’t sound good. I’m looking from a perspective of (hopefully soon) working person, and workplace isn’t ideal environment like their test booth, but even if we assume it is, your result say that you don’t get at all 30% of spoken things. That’s a lot IMO. I can’t imagine how you feel going by everyday with so much need to ask people to repeat themselves. I guess it’s probably easier with familiar voices.
My word score in that pathetic noise with good ear and aided bad ear was around 80 and I felt defeated (good ear alone was lower, which shocked me). It hit me hard how much HA really don’t help for new words and people. Like, I had a feeling but now I have measured value.
How can anyone say that’s fine and you don’t need more help, if that help is technologically available, it’s beyond my comprehension. It’s not like they’re paying for it anyway.
But I guess they hear good, so they cannot relate what really means not getting 30% information in.
I think main criteria for all those fitters, audis, people who make such decisions should be that they themselves are hearing impaired and in need of help. Especially those for testing CI candidacy. Then I believe we’d have different outcomes and definitely more empathy. Or maybe that they test them on empathy and ask for high score.
Until then, we’re alone in this, in some way.
And yes, trust is important and keep searching for it, both of you. My hugs to both of you. This journey really is tough…
1 Like
Spectrumplay, Raudrive has a slight better audiogram than me. But I can tell you: speech intelligibility with one CI since March this year is a HUGE different for me. In the booth the WRS didnt increase very much atm (55 -> 60%). But in real live with both HA and CI I can understand people much more easyly. I dont need to ask my family for repetitions that much any more. I can understand conversations with wrong pronounciations at all like my polish colleague does. I even can follow my TV without a streamer (but it’s still difficult though, my wife turns it very low - too low even for my childs), as long as you don’t get a hell mapping 
But yes, conversations within noise is to be learned again. But at least I can participate in other’s life again. That’s very valuable.
2 Likes
@Deaf_piper, I am so sorry that your last appointment was such a mess. I had my 3rd on June 2nd at another Aud - I knew that before. That mapping wasn’t too good, too. But I had a saved one on my 4th program as a fallback. I wonder that you didn’t get one saved. My clinic is only a 1h travel away from home so I could schedule another appointment for last week. That mapping is much better now, but I had to know in detail what to change, that wasn’t easy for me.
I am lucky to have my clinic in the nearby. Most of my CI friends have to stay at least overnight for each adjustment. I think that spplies to you, too?
@Raudrive, that’s my suggestion, too. It’s in your hand to reach 69% again. I’ve tried to fail getting good WRS with both HA when I was at my clinic the first time, too, just by reprogramming the HAs with my Aud’s settings . I’ve strongly wanted my first CI and I am now looking for the 2nd one. Maybe in 6-12 months.
2 Likes
@Dani I’m about 1.5 hours away from my clinic, it’s right on the edge of the CBD with absolutely no parking within cooee of the Clinic. It’s 3 hours for both ways. So I have to get a bus then a tram for the appointment. If parking was available it would take 30 minutes both ways.
I have an appointment on Tuesday at the CCC, to get my BT sorted. I also hope to get the master volume, treble and bass icons activated. Which will help give me better control of the God awful mappings. I’ll persevere with these current mappings for a few weeks. As I do need to lay down new sound pathways for the high pitches. With better volume control I’m hoping they will be tolerable.
2 Likes
Someone driving you there would help. They could stay busy while you had your appointment.
1 Like
@Deaf_piper Sorry to read about your bad mapping experience. I’m going to guess this happened because of the different audiologist. If you had your regular audi, this would not have happened? If so, another tip to self not to let another audi handle mine when the time comes. All of my follow-ups are to be handled by the same audi in the surgeon’s office. I’m just hoping she doesn’t leave in a year.
As I read this thread, am I to understand that you have control over your saved programs and can save a previous mapping to your processor? It won’t get overridden on a future mapping? You know how I feel about loud sounds. If you don’t get used to your mapping, I hope something can be done.
@debbie_o. If your Aud saves the mappings they should be on the computer in your Auds office. The N7 only has room for 4 mappings. So you get 3 new mappings and keep one of your old ones.
If my regular Aud hadn’t been off sick I’m pretty sure I wouldn’t be in this situation now. If I can get the master volume activate tomorrow I will have more control over the volume, I will be able to add a bit of bass to these high pitches, hopefully bringing the pitch down then I might be able to work the volume up to 10. As it is now all these mappings are on volume 1, it only goes up to 10. So I can’t go any lower than I am now. I will see what happens tomorrow afternoon.
I’ve had an expensive afternoon at the CCC getting everything fixed. I needed to buy a new phone clip as my old one was broken, $460 AU later. I now have all my bimodal hearing back. Also one of my old mappings has been returned and keeping 3 new ones.
I also learnt that Hybrid EAS users can’t have any of the following “master volume, bass & treble” activated in the Nucleus App. Which is a nuisance but I suppose they have a very good reason for this.
1 Like
The Good, the Bad and the Ugly. A day at the CCC.
A learning experience. Thanks for sharing.
, any good news now ?
Now u completed 1 years + 1 month … so how ur experience? Did the sounds become normal? Are you having problems with the speaker and wearing a mask? …
@Toti I haven’t had my 12 month assessment as yet due to the CIC having to close due to stage 4 lockdown here in Melbourne. It will happen sometime before the end of the year when lockdown is eased so we can make appointments again.
The sound has normalized a lot now but still not fully. For me, as long as I have the EAS attachment it may never full normalize. I’m told it’s the high frequencies that are causing the robotic popeye type sound.
1 Like
Well, I get to experience my first imllant sounds on Tuesday because I will be activated then. So I’ll see how my first mappIng goes. This will be interesting. Plus I will need to start the rehab process.
1 Like
@debbie_o exciting time for you. I will be thinking of you on Tuesday. 
The rehab process is a long process. I still do 2 hours CI streaming every day.
1 Like
here we are … I wish you an enjoyable trip awaits you and Your feedback don’t forget .
Fingers crossed peoples, hopefully I get to get my 12 months (July) assessment on Wednesday, that’s if Covid doesn’t get in my way yet again. And with lots of luck I can get rid of these absolutely horrid mappings I’ve got at the moment. I’ve struggled for 3 months with them now. I still find them far to loud, UGH!!!
1 Like
Good luck with your appointment. Will the audiologist you like be there this time?
I wonder how you would like the mappings you had before, now? Have the mappings from hell helped you? Just curious.
Hopefully you can get all your Bluetooth issues ironed out too.
Maybe this attachment could help you. At the bottom you select iOS or Android.
@Raudrive I gave up and just concentrated on one of the 4 mappings I could partly work with. I haven’t been able to get past 5 in the volume control. As for having the sensitivity on 12 all the time it just causes a lot of static like interference. So I wouldn’t say these mappings have helped me very much at all.
My appointment is with my favorite Aud so unless she calls in sick on the day it should be with her hopefully so fingers crossed.
My 2 adult children and SIL can’t stand, standing close to me. As they hear a high pitch pulsing screech coming from my processor. (I can’t hear it) They tell me it really causes them pain. I can’t take them anywhere in the car as it’s just too enclosed and the pain level it causes is increased. So I have to turn my processor off until I can work out what’s wrong and causing this problem. I’m guessing it’s the hybrid. I’ll quiz my Aud on Wednesday if she can’t answer I’ll be emailing Cochlear to get answers.
I don’t currently have Bluetooth issue as I haven’t installed iOS 14 yet. It’s working just fine on the latest 13 update. My issue is I have 3 devices I have to pair simultaneously with my phone. One isn’t a problem but 3 simultaneously I just muck it up.
1 Like
@Raudrive that video is the most ridiculous thing I’ve watched. I’m trying to pair my iOS, phone clip, HA & CI. It tells you to “listen for 6 beeps” My HA & CI are on the bench where I’m trying to pair them. I can no more hear 6 beeps than fly to the moon!! Especially without my ears on my head!! I defy anyone with CI’s trying to pair the devices to hear those 6 beeps!!! GAHHHH!!!
2 Likes