Hi everyone! I’ve been ‘lurking’ (ie: reading) for the last two days and thought I would drop a line to say hello.
At age 28, after developing a spot of tinnitus and getting my ears checked, I was diagnosed with a moderate bilateral cookie-bite hearing loss that I was told had likely been present since birth or childhood (very symmetrical and with no obvious rapid progression). At the time I was working as a professional classical musician and it was suggested that my high-level training, which started at a young age (10), was part of the reason I’d not been diagnosed - the good ol’ brain being so plastic and adaptive! Not long after my diagnosis (but NOT because of it), I made a big career change and am now a PhD qualified biomedical research scientist working on understanding and treating genetic diseases. This career transition has offered me a different lens with which to view my experience! I also have Ehlers-Danlos Syndrome (collagen disorder - think double-jointedness but it’s pathogenic, haha), was born without one of my draining tear-ducts on the left, and have “congenitally narrow external auditory canals”.
I had a tinnitus flare recently (which has calmed, thankfully) which inspired me to get my hearing checked again, as it’s been >6 years (denial is not a river in Egypt, haha). I’ve lost another 10% or so, still symmetrical bilaterally, and have decided it’s time to consider some assistance. As hearing voices in noise (e.g. at restaurants, at conferences etc.) is a primary concern, my audiologist has recommended I trial the new Oticon Intent 1 aids. I’m in Australia and they’re certainly not cheap (almost fell off my chair!), but I have access to a 60 day free trial AND can pay them off over 3 years interest free courtesy of a payment plan offered by the audiologist.
This is all very new and frankly quite intimidating, but it has been SO comforting to read through the forum here and see the breadth of experience being shared amongst the community. I’m really grateful to have access to such a great network and am sure I will be asking questions as I go through the trial, especially as I don’t know anyone who wears hearing aids!
Thank you for indulging my long intro post if you’ve read this far! And hello (waves enthusiastically) to any fellow cookie-bite-ers in particular ! I understand that we’re a relatively rare bunch.