Hello Dr. Barnes. Thank you again so much for your fast reply.
Well, I made a complete blood count on my own with my doctor and also wanted to check for lyme disease - in connection with Bells Pasy as possible result of it. No other checks and the lyme disease based on blood was negative so my ENTs didnt go that way anymore…but in my opinion a negative blood test on lyme disease says nothing. I had troubles with my left side since one year and did so many sport activities to get things better without any result until I reached a training level of 4 hours a day I still felt I had no power at all.
So my next steps are getting in touch with someone for TMJ Treatment and someone for Lyme disease and testing for virus and/or other infections. I just have to make a research for possible infections I think. I took out my wisdom tooth left top side and bottom top nearly 2 months ago…bottom last year…no change on the face. Face issues started with the hearing loss or short time before it.
But yes I overall think its a virus maybe in connection with that lyme disease. Weak one body side, hearing loss, swollen outer ear canal, difficulties swallowing left sided, shoulder-arm syndrom without any result after 3 months physical therapy and 1 year training and sciatica pain left sided…still here…the symptoms get more and more and they reached my ear and reached my face.
I didnt know the beep to buzz is an indicator for viral diseases. Is it reversible? Is it part of a virus infection of the inner ear hair cells or just the ear drum? Does the thickening of the eardrum can go away also after 5 months when everything started when I can detect the virus? I know its hard to say but I never had that feedback yet and that caught my attention. Thank you so much!
The ENTs also said my eardrum is soft and the last ENT said I had some white “veil” on it and was cleaning it. But really not much he said! Calcium? As the tympanogram is normal the only point where the sound could be destroyed is my eardrum? Or could also an other position in the middle ear (still infected and maybe swollen) destroy only higher frequencies? What else could make that high frequency gap in my condition and why could my inner ear has in the same frequencies problems as my outer ear air/bone?
I have a lot of troubles as i suffer from a Tinnitus that actually sounds like the “buzz” sounds and I also cant follow conversations as good as before my hearing loss in loud areas like restaurants so I try to avoid those places right now. I have started to get in contact with an audiologist last year and they also said something is wrong that gap is completly unusual. After 4 ENTs the audiologists throwed me back to the ENTs checking all again. Now after the ENTs said again its normal to have that gap (like recruitment or physical phenomenon of sounds) and 5 cortison therapies one of them in the middle ear by a needle I went back to the audiologist and we try right now to get in touch with hearing aids…maybe for music…better understanding or just to train the nerve with sounds. I dont know I will give it a try of course. The problem is the buzz-sound when I get the hearing aid I am afraid I cant use it if I hear them…so i have to solve some issues first I dont want to flip frequencies with the hearing aid that doesnt make sense to me in my condition.
My biggest concern is that I might have a virus and noone is actually doing something and when a new hearing loss hits my left ear also my speech area gets damaged and my hearing loss was already August 2017.
Thank you so much you give me so important advises and information!