Hi
Just wondering if anyone is in a similar boat to what I am…
I have Crohn’s disease, I’ve been on adalimumab (humira, imraldi etc) for at least 5 years. I have severe-profound hearing loss, presumed as a result of the Crohn’s somehow.
However recently (within past 18 months) I have been getting recurring, regular ear infections in both ears, and sudden unexplained deafness in one ear.
Often when I get sudden hearing loss I book a microsuction appointment to get wax removed, often to be told it’s not wax , but rather an infection.
This week in my left ear, this time, gradual hearing loss brought on by wax. I got the wax removed yesterday, ear canal is clear and no infection, but I cannot hear anything. The problem is not the hearing aids, because I can tell when it is my ears because there are certain sounds I can hear without the aids.
My queries:
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Has anyone experienced regular ear infections like this, possibly as a result of using the adalimumab injection medication?
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Does anyone have any suggestions as to why despite my ear being clear of wax and infection, I am suddenly near deaf in one ear, despite being ok few days ago? This sudden deafness comes and goes, it’s usually as a reault of infection, but this time seems different…
My background:
I do not swim anymore, intentionally to eliminate potentially swimmers ear being the cause of infections
Do not put anything in my ears except hearing aid mould. It’s in no more than 10 hrs a day, try to have one day a week no aids in.
Plan to speak to my Crohn’s consultant at some point. See if they can think of something.