My audiogram is all in the profound, well it’s a slope which goes down gently in the mid frequencies and goes down to the high frequencies. Also I can’t hear in one ear ever since 20 years ago. This is the hospital audiogram, I can’t post the clinic’s audiogram for privacy but it’s absolutely the same.
I shouldn’t hear the thing I hear during tests, based on my audiogram.
The audiologist was weirded out and told “there’s a big mess in that ear”, even more so because I also have a “too much” treshold right beneath my hearing loss, around 10-12db beneath that were it starts being too much.
It’s like people that can’t see very well from afar, but very well from up close. For example I can hear the audiologist to perfection when he talks to the headphones he gave me, I was really like “WHAT! DOC I CAN HEAR YOU WELL AND YOUR VOICE IS SO NICE AND CALM!”. Though the word discrimination test was a word abomination test, it was like zero or close to it, everything sounded muffled and sorta like “short growling” if that makes sense. Also in general I can hear my voice perfectly, same goes for the coughs and burps so I guess my “inner audio” works well. I can even hear the brushing of my fingers on the ear, the ear hair trimmer, the hair trimmer itself, very crisply, the fizzing of an ear wax solution, super crisp, but yeah I don’t even build up wax, which is nice for sure.
Does this type of hearing loss have a name?
I did an MRI and everything is in order, nothing wrong with my ears or brain. Though I have chronic fatigue syndrome and I realize that on my good days I can hear a bunch more, especially without thoughts on my mind, but for example during this week my hearing went down as it does when I have things on my mind, so that’s a fact. Everything but hearing is fine with my health tests. Sure enough anxiety is sucking energy out of me constantly, but hopefully this new audiologist is the real deal and he will help me for real, because the first one was fishy as hell and gave me a Power BTE which was distorting like crazy, the volume was SCARY and he had me doing zero tests, he had no gear for testing at all, criminal…he just wanted me to “get used to it”, but you can’t get used to something so wrong.
In the new clinic I have a fitting on tuesday with Resound Nexia microRIE, already did a ton of tests the first time the new audiologist received me in his clinic, he has all the testing rooms, all the gear and he has the REM testing gear too, so I’m covered, he really gave me a long-ish explanation of what to expect, the ear mold best suited for me(he took the impression the same day), but in practice given the weird nature of my hearing loss, it’s a “we’ll have to fit and see”. I paid no money and I will only have to do so if it all goes well during the 5 weeks trial/fine tuning time. I already bought an iPhone and laid out iPhone’s accessories to make the journey easier. The clinic is 30 minutes away and the last time the whole trip and visit drained me, took me the usual 5-6 days to fully recover, but I have to go through this, I really want to hear better and be able to communicate. In fact I even had to change my phone carrier to get better coverage so that I can better use transcribing apps, which have been my salvation for a TON of stuff because the doctors just wont use paper and pen or simply open wordpad, enlarge the letters and type out things rotating their monitors, they would pretend I could read every type of lips, which is definitely not a thing, some people think they have super readable lips but they really don’t, so transcribers are an absolute life changer and they need the best 5G coverage and speed to work well, so I’m set.
Sorry for the wall of text but I think it’s really interesting to analize, especially for the audiologists lurking this forum.
But I’ll follow him since he really seems to know his stuff.