I am currently researching the Baha after realising I heard 100x better when a speaker was lying against my bed frame and I put the back of my head on the wood then putting it to me ear! The problem is really with getting agreement to go ahead because testing doesn’t really show up the nature of the problem. According to normal qualifying thresholds I don’t havea large enough air-bone gap, because all they are looking at is the difference in audibility threshold. They are not measuring the quality of the sound, just the quantity. I don’t have a stable and consistent 30dB air-bone gap at present therefore I do not meet the Baha criteria.
The problem is EDS is not so much with the sound not arriving at the other side of the middle ear at all, but that it is seriously warped by the time it gets there. Frequencies can change and clarity is cut off significantly. Because it’s a rare condition to start with and then all the specialists are rheumatologists because that’s its major manifestation there really isn’t such a thing as a specialist in EDS and hearing loss. If there were one then I might well be able to get that person to agree to a Baha or a middle ear implant system, but first I have to send out psychic waves for someone to start studying EDS and hearing loss and how they relate to each other.
And then find someone who would like to do surgery in a condition where surgical complications are rife. sigh
I’d love to get hold of a Baha on a band to see what it’s like, and if it’s good then I would start trekking around the country looking for someone who will implant one, but I can’t get a trial version because they only give those to peopel who have been accepted for the operation, which won’t happen unless I have a successful trial!! I figured when they said there was a trial version on a band they meant you tried it for a few months or something, but it turns out that procedure in the UK is for you to agree to the surgery in principle first, then when you go in to discuss the surgery you get to wear a test band for about 10 minutes in an audio booth, or if you are lucky you can wander around the hospital with it on for an hour or so, and then you must agree to the surgery and hand back the demo. OMG!
There is also the risk just now that I’d have to wear a body-worn Baha because they are not really designed for you to have much SN loss. I wouldn’t consider it unless I can meet the criteria for the head-worn version.