I have a daughter that will be 5 in April. She has had a bagillion ear infections, among other things, since she was born and I’m about ready to beat the next ENT/Audiologist/School IEP person with a baseball bat if they tell me nothing is wrong…She’ll grow out of it…She has ADD/HD…! I know that there is somewhat of a novel to follow, but I promise you this is an abridged version!
3/09 - tubes placed, OME present in both ears, and adenoid (4+) removed. Never had a pre-op hearing test done, nor an ABR while she was under, first mistake!
5/09 - Tymp is flat lined (normal) with a high ECV (normal). Audiogram is partial at best and the OAE didn’t work right (total user error). This was a disastrous session as the idiot clipped the alligator clips to my daughters skin and then proceeded to get mad at her because she kept crying. I still get very upset thinking about it!
Sound field warble tone done only on the right ear.
500 = 25
1k = 20
2k = 15
4k = 20
10/09 - we had an OAE done, I don’t really know how to read it. There are two frequencies, but I’m using the second as it’s whole numbers and the dB’s for each ear is the DP-NF. This is what I could interpret;
3k 24 24
4k 19 21
5k 16 14
Early 1/11 – New ENT because of move. Audiology evaluation done. Things don't match the way that they should. Diagnosis of mild (on the verge of moderate at some frequencies) bi-lateral conductive hearing loss.
- Rt ear has type B, flat tymp with normal ECV and absent ipsi reflexes. Why is the ECV normal? Shouldn’t it be high, like 3.0 or more.
- Lt. ear has type C, with the bump on the left, indicating negative pressure and good compliance (I don’t know what that means), but it has a reflex present at 1000hz but not at 2000hz. Why is there a reflex present?
- She responds to voice at 15dB AS and 10dB AD. Really, we don’t talk at that level, it’s 35dB and why didn’t they test at that level?
- Pure Tone results
250 25 40
500 25 30
1k 10 20
2k 10 20
4k 30 20
Late 1/11 - 2nd set of tubes, OME present in both ears, and tonsils (kissing tonsils, 5+) removed.
12/11 - Hearing test done to appease me (ENT is starting to not like me).
- No air conduction done, No tymp done
- Pure Tone results
250 25 30
500 25 25
1k 15 15
2k 7 12
4k 20 20
I was told that everything was fine. And her mild hearing loss is due to the weight of the PE tubes.
If I knew what I know now four years ago, I think things would be different. Heck, I even have a deaf cousin that I’m really close to (she’s been helping me as much as she can) and I still can’t seem to ask the right questions, get the right tests, or help the issue. My daughter is developmently delayed in speech and motor skills, making her academic learning iffy. We had an IEP done as our insurance will not pay for therapy. Insurance says she never “lost” her hearing, as she never had it, so they can’t prove she’ll ever get it, therefore they won’t cover any of it. The IEP was awful and incomplete. Even though they all admit she has a hearing problem, all of her issues stem from ADD and she needs to be pulled from her current education program and be placed in a Special Ed segregated classroom. WTF! Where did ADD come from? Spec. Ed. classroom? She’s inattentive because she can’t HEAR YOU! (Bang head now! And again, and again, and again!) She hears randomly; If you give her a three step order, she’ll do the first and last, because she didn’t hear the middle step. If she does all three, she can’t remember what you told her to do, she just does it. There are moments when she is there and then gone. Usually under a minute, but she is clearly gone, can’t hear you, couldn’t hear a train if she wanted to! She over compensates visually. She can “read” a room of people in 5 secs. flat, but engage in a conversation, nope not happening!
Anyways, I’m not waiting for an IEE, because I could be a grandma by then and I have set up my own IEE. We have seen the pediatric ENT at Rady’s Children Hospital, and we will be doing our full audio evaluation on Tuesday. With those results we will see if we need a BAER, MRI, or other tests. I need to know the following;
- What tests should I make sure are completed on Tuesday?
- What are some important questions to ask? I have a list, but I want to make sure I don’t miss a good one.
- If the hearing loss is the same or worse, I need to force the issue of HA’s correct? I mean it’s obvious that she has perment conductive hearing loss, if not something else (talks of audio neropothy have happened more than once)
Am I missing anything?
Thank you so much!