I have single sided hearing loss; my ENT said it is permanent. I had been going through a “greiving” process, and I was about to accept this diagnosis - but wait! - their may be something that was overlooked!
That glimmer of hope came as I read and reread this article about Sudden Sensorineural Hearing Loss. I have all the symptoms described, and as the article explained, “If no diagnosis is made, an empiric treatment may be initiated in hope of a response”. It is worth a try, but the optimum window for treatment is closing; “this should be treated as an emergency”, the authors said.
I contacted the ENT offices of the authors at the Indiana University Campus 15 miles from my town. I tried to get an appointment with them for a second opinion, but as you probably guessed, they were booked. They suggested another ENT office and I have an appointment with one of their doctors on 4/02/07.
Somewhere between 2/12/07 and 3/02/07 a viral infection from a bad cold was a catalist for a 93% hearing loss in my right ear. I cannot pinpoint the time of the loss because severe mucus blockage was effecting my hearing, but I believe most, if not all, of the loss occured toward the end of this period. I am a 56 year old Leukemia (ALL) survivor; I am sure all the chemo and radiation my body suffered through has been a contributing factor.
Doctor Visit Time Line Diary… My Cold - to - 93% Hearing Loss and Beyond:
2/12/07…Had appointment with my Leukemia Oncologist today. Complained about severe nasal/sinus blockage. I was experiencing “awareness” and dizziness issues. My hearing was reduced, but no more than any other bad nasal blockage events that I have had in the past. He ruled out cancer with an MRI, but the MRI showed “Marked opacification of the left maxillary sinus with minimal mucosal thickening of the left ethmold cells; otherwise no significant signal of abnormality” My Oncologist ordered an ENT visit.
3/02/07…Had appointment with my first ENT today. It was scheduled on 3/16/07 but I insisted the ENT see me today because my right ear hearing seems to have deteriorated over the past few days and my nasal/sinus blockage was no better. He felt I had Meniers Disease, but needed more tests. He perscribed Augmenton and Mucinex, ordered Audiology test and Balance assessment. Audiology test was performed today;
Audiogram Results
…R…L.
250…30…25
500…45…25
1000…45…15
2000…85…60
4000…80…60
8000…90…45
Discrimination: Right:8% with 60db Masking - Left:84%
3/14/07…Balance Assessment was today. “VGN revealed a near complete loss of horizontal canal peripheral vestibular function. Rotary chair results agree. CHAMP was attempted but inconclusive due to degree and configuration of hearing loss”.
3/19/07…Second appointment with my first ENT today. All tests were in and his diagnosis was permanent right ear hearing loss. He ordered balance therapy, another visit in 90 days, and escorted me to his hearing aid department.
As mentioned earlier, because of this article on Sudden Sensorineural Loss, I am getting a second opinion on 4/02/07. I am looking forward to my new ENT’s opinion. Even if he is not sure, I hope the ENT will initate treatment in hope of a response.
4/02/07…First appointment with my new ENT today. Got second opinion from him; He agreed! I am now taking prednisone. The dose will be slowly tapered down from 30mg three times a day to no dosage on 4/20/07. I will see him that day to get an audiogram to confirm success. If I am no better, we will do localized prednizone injections. It so happens the new ENT spent five years of his schooling in the offices of the authors of this article.
The ENT prepared me for the worst because regaining hearing will be difficult with my 93% hearing loss. I think success though should be measured by how hard I try. If I do not regain any hearing, I know I tried - I can live with that. If I did not see this article until after the window of opportunity, I would not have been able to try. That would make me angry and I would have regrets the rest of my life.
4/20/07…Second appointment with my new ENT today. SUCCESS!!! My hearing in my right ear is improving!
Audiogram Results Right Ear:
…3/02/07…4/20/07
250…30…30
500…45…30
1000…45…30
2000…85…55
4000…80…70
8000…95…45
The prednisone has started a healing process that is causing my hearing to come back. I can hear intermittant “clicking” sounds in my right ear. My ENT believes this is nerve endings reparing themselves. Warning about prednisone; this drug is nasty. I am a veteran prednisone user from my Leukemia fight - but wow! This drug disrupted my daily routine, but my hearing is precious so it was worth it.
I go back to my new ENT on 5/07/07 to see if I have any more improvement. If I have improvement, we will stay the course of doing nothing. If there is not a lot improvement my ENT may start localized prednisone injections through my right eardrum.
5/07/07…Third appointment with my new ENT today. Hearing in my right ear is improving - a little!
Audiogram Results Right Ear:
…3/02…4/20…5/07
250…30…30…30
500…45…30…30
1000…45…30…30
2000…85…55…40
4000…80…70…70
8000…95…45…40
My ENT felt I would benefit form localized prednisone injections through my right eardrum. There is a small risk in doing this, but my ENT and I feel the potential for hearing improvement is worth the risk. He did the injection, and it was nearly painless.
I go back to my ENT on 5/22/07 to see if the localized injection has improved my hearing. At that time we will decide weather or not to do more injections.
5/22/07…Fourth appointment with new ENT today. I am disappointed. My hearing has not changed. My ENT said that further treatment with prednisone injections will not be effective. I tried and did regain some of my hearing through predisone treatment. I only wished these treatments had started earlier - I may have salvaged more of my hearing.
1/11/09… Nothing has changed since my 5/22/07 entry. I have tried to adapt to single sided hearing loss. This loss has caused ballancing issues. If a policeman gave me a field sobriety test, I would fail it and I never consume alcohol. I no longer trust myself on ladders or high places. I think the one thing I miss most is the ability to identify where sound comes from. My 5.1 sound system sounds no better than a single speaker radio.
1/31/11… In my 2/12/07 entry I noted that a MRI showed “Marked opacification of the left maxillary sinus with minimal mucosal thickening of the left ethmold cells…” In layman’s terms, my left sinus cavity below my eye was stopped up. I recently learned that there is a small opening that drains this sinus cavity into the nose and it had grown shut causing the sinus cavity to be forever filled with fluid. The symptoms of this blockage was evident to me 25 years ago, but the ENTs I visited through the years would prescribe nasal sprays and send me on my way. But my new smart ENT did another MRI last year (2/10/10); he found the very same problem! With surgery he reopened this opening and WALA - no more sinus problems! With this simple surgery my life has been changed. I believe the sinus cavities’ inability to drain created a “virus factory” that resulted in all kinds of health issues over the past 25 years; issues like severe headaches, colds, flues, etc. Before the surgery I had headaches on a daily basis that could only be stopped by $50 Immatrex injections or $29 Zomeg pills. Now I NEVER get headaches! Maybe this blockage was even a part of the reason I got Acute Leukemia.
As noted earlier, at the time of my sudden hearing loss I was suffering from severe nasal blockage. I believe this nasal blockage was started by my sinus “virus factory”. It’s reasonable to assume this was a catalyst that caused my single sided hearing loss.
I wish I had this surgery 25 years ago. Learn from my experience. If you have sinus problems find a good ENT and persist in getting a fix - your hearing may be at risk.
If you have Sudden Sensorineural Loss IT MAY BE TREATABLE, but it must treated as an emergency. If your ENT says it is permanent, GET A SECOND OPINION - NOW! You will not regret it. If you act faster than I did, you may be able to salvage more hearing than I did.
Thanks for reading and replying with your post. Jerry