Time to move forward then. Flat moderate? Flat severe? Flat profound? Are we talking hearing aid trial or straight to cochlear implant?
As I said, I still expect the tinnitus to calm down eventually.
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ENT couldnt do injections due to having a hole in that ear drum and said my luck was pretty much out and that i had what they call a dead ear. So profound loss. Basically i was all along the 90db line.
Not suitable for hearing aids and a cochlea implant is not available to adults with one sided deafness. Only complete deafness.
Was told to learn to live with it and that was that.
Trying to be positive but im struggling.
Whatâs the cause of the Perforation?
A Cyst ruptured ear drum and ear bones at age of 12. Despite that i still had roughly 40-50% hearing left in there
Didnât you say you were going to the USA? Is that for a visit or to become a resident? If the latter, possibly a CI can be done at that time.
I am but just for a holiday.
I can hear ok with one ear, itâs not ideal but i have nothing else.
Maybe a CI in future if im ever to become completely deaf
Ok, that puts a slightly different perspective on the subsequent hearing loss. Especially if youâve got an exposed ossicular chain.
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Yeah I think my chances were pretty low with that in all fairness but still a kick in the teeth.
My ear keeps doing this weird thing today where itâs like trying to equalise pressure. Will go full and the ease off. Like when you get the 2 second tinitus episodes hearing goes and returns.
Very odd. Hoping its just itâs way of trying to recover.
Obviously hearing is out the question but pressure and ringing relief will be a bonus!
Have you booked an appointment with an audiologist?
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@Sophs50522 Ugh, that really stinks about getting a cochlear implant only after going completely deaf. In US you have to be no higher than 60% hearing in your other ear with a hearing aid. I barely made it at 59%.
If your surgery is successful, with rehab you can gain hearing back in your deaf ear. Itâs a bit different, but your brain adjusts to it. Every country is different. My opinion, but I think waiting to gondeaf is harming a candidate because it might make rehab more difficult. Your hearing ear is hearing sounds, speech that through the sound processor and implant your brain will re-acquaint your ear to the way the word sounds.Hope that makes sense. Your brain wonât have to work as hard to recognize the sound or word. It might be because everyone is covered by insurance and they donât want to incur the expense. Itâs expensive.
I know itâs hard to believe now, but you will get used to one sided hearing. I wasnât wearing my hearing aids when it happened to me so I initially couldnât hear anything. Two days later I tried my hearing aids, nothing in one ear and relief and joy when I put the other aid in. I could hear, I wasnât completly deaf. Iâm grateful for that. Just take it slowly, one day at a time. Donât dwell on it, that makes it worse. Keep us up to date.
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Thank you Debbie.
I think id learn to live one sided deafness but the diplacusis is absolutely soul destroying.
Every time i speak i keep getting the robot tone straight after in the ear.
It went away whilst i was on steroids but returned again.
Im literally losing the will to live! Im slowly giving up
I will have an appointment with an audiologist
after my next ENT appointment on the 19th feb
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Robot ear?
Is it a distortion sound?
Maybe along the lines of a busted speaker?
That is my left ear.
Believe it or not you will adapt to it.
I did.
It still drives me nuts sometimes, but Iâve learned to live with it
Iâve never had SSNHL.
Mine is nerve damage. Being stupid when I was young.
Yes pratically that, i sound like Dalek when i talk ? Incoming sounds are fine though which is really weird. Itâs just when I talk.
Nerve damage would make sense with me having SSHL. It went away though with steroids so i donât understand that bit!
I hope i havent got this forever. I cant hear myself speak properly. Its frustrating!
Yours will probably go away.
If for some reason it doesnât, trust me, you can and will adapt.
It just takes time.
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Ah thank you, I really hope so! Itâs very annoying!
Dealing with hearing loss and tinnitus is enough let alone living with that too!
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Before my recent cochlear implant, I wore a CROS aid in my deaf ear. What it does is send the sounds from the deaf side to the matching hearing aid in the better ear. This way I could hear voices and sounds from both sides.
A CROS might help you cope since you donât qualify for a CI in England. Ask your audiologist about it.
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I totally forgot about the CROS. Originally I was told that would be tried first and then a cochlear implant. Ends up I was never fitted for a CROS so I canât speak to how it works. If that is an option since you canât get a cochlear implant, I would definitely try it.
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YE GODS. You have my utmost empathy! I definitely get hearing issues when the atmospheric pressure changes. Speech can sound weirdly âtinnyâ and flat. On top of which my own 24x7 tinitis is louder and more tuneful: Bong! BONG! Bong-bong-bong-BONG!
I hope you get some answers to this curious phenomenom youâre experiencing. Drugs may cause MORE of the issue if you are sensitive to it. By the same token, Iâd probably try anything - even old wivesâ tale - if I knew of one. Antihistamine? Warm compresses? Massage the ear?
Keep us posted!
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Just thought id post an update, tinnitus have calmed down a ton. Itâs there but nothing like it was and i can finally sleep.
Voice distortion still very much there and very annoying! ( i really dont understand this symptom )
I can now slightly hear a sweet wrapped being rustled next to the ear where as I couldnt hear anything before it was pratically dead.
Itâs taken a slight edge off feeling one sided at least. But i think being on week 3 from tomorrow this is probably the best im going to get!
Im currently doing music therapy. Not sure if its helped!
MRI next Thursday.
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