I’ve had Menieres for the last few years and my condolences to all you others in this sorry old boat. My right ear has gone through fits and starts, now nearly gone. I chased it with a hearing aid, but I’m doubtful I will ever have anything serviceable in that ear again. What I get now is mostly noise instead of sound, and, of course, the ever-present tinnitus.
Worse than that is the vertigo. I only get attacks every few months, but they completely debilitate me. I can’t stand up, much less get to the medicine cabinet for anti-nausea drugs. So I wait for the vomiting to come (now I keep a bucket next to the bed) and try to breath through it until I can sleep again. I’m terrified that the attacks will become more frequent. I don’t think I could keep my job if it got worse.
My big gripe (ok,after griping about the condition) is the doctors’ response to it. The ENT had nothing to say, just handed me a brochure. My gp said there’s nothing but bonine for it and the low salt diet (so far, that hasn’t had an impact). Is their disinterest based on impotence? If anyone has suggestions on good ENTs in the SF area, I’m all ears (well, one ear anyway). Any good coping skills are also most welcome, especially what to do to minimize the severity of the attacks.