Hi, First timer on here. Im a distraught father who has just learnt that my daughter - Megan of 2 years - has Auditory Neuropathy. She is due to have a MRi scan in 3 weeks. My heart sank when i heard the news but im very confused.
My daughter had a ABR when she was 1 month old and she passed - hearing within normal limits. Then we went to see the doctor 2 months ago about Megan not really speaking english words. She babbles, laughs etc - but only got 10 words. The doctor said he will send her to speech therapist and get a hearing test. The audiologist says Megan seems fine as she has responded to noises but said i need to evaluate her in 3 months time just to be sure. We said no and requested a ABR again. So Megan got an ABR and the results were horrifying. The results came out as left ear >95 db and =85 db on right. They checked the cochlea and said that was working totally fine so they presume its the nerve ANSD.
Why did she pass the 1 month ABR test and fail the 2 year test?? Why do i feel she can hear me and respond to actions. Im not in denial - i know something is not right with Megans hearing but the results do not match what she seems to have. As a parent, i m going hell. You can understand why people take their own lives.
I have read a lot on stem cells to help hearing loss. Especially in Panama and RNL Bio. But can that help ANSD???
Can someone help me.