Hello everyone, we are new parents and our baby boy is officially 6 weeks old. We have sought the best possible medical care and are trying to digest everything to point us on the right track. Any input is appreciated if you have had any similar experiences.
Here are a list of events
Hospital - C-Section at 39 weeks due to breech baby. Failed ADR on day 2, 3, and 4. Told to come back and re-test in 3 weeks. He did not cooperate and was crying/fussing through all of them.
Retest - Came back to hospital and with same person, performed ADR with Fail/Refer. Filled out all necessary paperwork to proceed with additional testing.
Met with Pediatrician 1 week after retest - The paperwork for additional testing was sent to UCLA House and there would be another 2 week delay before their first available appointment.
The pediatrician recommended meeting with local audiologist.
Local Audiologist - Met the day after the pediatrician visit and tested OAE only. Said everything is perfect and a 4/4 pass on both ears with all results printed and in hand. Also said, maybe check back in between 6-12 months but his hearing is perfect.
UCLA House (2 weeks after audiologist)- We were still seeing signs that he was responding to minimal sound and proceeded with our previously referred appointment with UCLA House. No fluid in ears and fail on OAE and ABR. Profound loss in both ears was the consensus. They sent us next door to get approval on hearing aids and talk further with a surgeon about future cochlear implants.
Current - The UCLA appointment was today and we proceeded with the hearing aids as recommended. Based on what we have learned and where we are at now, we are going to proceed when he reaches 9 months with the cochlear implants if it is still recommended by UCLA and hearing does not seem to be improving.
Any recommendations on how you would proceed or if we should look for further testing since he passed the OAE at the local audiologist in the middle of all this.
Thanks if you took the time to read all of this.